Good news first- Wednesday when I got to the hospital Kennedy didn't have her NG tube! They pulled it and decided to try tough love. Basically she is ad lib on her feedings. She can eat what she wants when she wants but they will wake her if its been longer than 3-4 hours since the last feedings. They are going to watch her for a day or two and see if she takes most of her feedings- hopefully 90% or more.
Not so good news- Kennedys ROP has progressed to stage III in both eyes and she is going to need laser surgery to try to keep the retina from detaching. Yesterday we went and signed consents for the surgery and now they think it will take place next Tuesday. They will have to sedate her, but hopefully they won't have to give her so much that she has to be re-intubated. Also if she is doing well on her feedings she will have to wait for the eye doctor to ok her before she can be discharged.
Early this week Shawn and I decided I would return to the Ronald McDonald House on Monday if we didn't have a discharge date by the weekend. We thought it would be best for me to go in and feed her to see if she would do better with me than the nurses. Since she seems to be doing well on her feedings we are hoping she will continue in that direction, but our plans are still for me to return to the Ronald Mc Donald house next week. Hopefully they will be able to get me in before the surgery on Tuesday. We are still planning to room in tomorrow night.
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