Friday, January 16, 2009
We need your help!
Thanks!
Katie, Shawn & Kennedy
Tuesday, January 13, 2009
Happy New Year!
In the name of the New Year, looking back, and fresh starts I hereby declare this Kennedy's official New Year update. Hopefully next year this time, maybe sooner :0) ,I will do another big update for the year and we can look back and see how much Kennedy has grown and changed. Can you believe that Kennedy turned eight months old on Sunday? I can't. I know they say time flies and you don't believe how fast they grow, but its so true. Its even weirder i think for me because even though Kennedy is 8 months old she still looks like she is only 3 or 4 months plus she has only been home for 3 months so it really doesn't seem like that long. Every day she amazes me so much. She is always doing something new, or better and exceeding our expectations. She laughs at daddy all the time now and always has a smile for everybody. We are working on strengthening her core so she can sit up and she loves doing baby crunches. Her hair is really starting to come in, although, only we really notice it since she is still such a baldy. No teeth yet, but for the last week or so I have been letting her have cereal so she can practice eating solids. Most of it gets spit out, but she has a good time with it and seems to look forward to it when she gets set in her high chair. Yesterday she even opened her mouth real wide for the spoon when I said "ahhh." She rolls from her back to both sides evenly now but hasn't been able to make it all the way to her tummy. She is reaching well and has become an expert at getting her hand to her mouth in one try. She cant hold the bottle yet and has difficulty getting the pacy into her mouth the correct way but every day she gets a little better. Shawn and I have her on a schedule for feeds (8, 12, 4) and have recently stared a bed time routine. She gets a bath, bottle, and book and is in bed by 8pm. She usually wakes around 7 am and I am currently trying to figure out the best nap schedule for her. She is still eating poorly. On good days she will take around 530ccs (about 18 ounces) for the whole day. When she came home from the hospital she was taking about 450ccs ( about 15 ounces) and that's what the bad days still look like. It was ok but she keeps getting longer and not gaining much weight so she is getting to be a pretty thin baby and she is starting to loose some of her rolls. Its to too bad yet, but enough that I am anxious to talk to the doctor about it next week. We have weaned her off her Diuril (diuretic). Ten days ago we switched her reglan to twice a day instead of four times and she was doing so well on it that Sunday we took her off all together so hopefully she will continue to do well and it will be one less medication she has to have. So for right now she is on Pepsid 2xs/day, Phos-Nak 3xs/day, Eyrthromicin 4xs/day, and a multi-vitamin once a day. Last week Kennedy weighed 11 pounds 7 ounces which was two ounces more than last month- not a lot but still going up and up is better than maintaining and way better than loosing. She is wearing size 3 months clothes and I have a feeling she will be in them for a while since I just got rid of the last of the newborn size stuff just after Christmas. Even though Kennedy is still 3 1/2 pounds from the weight limit on her bassinet Shawn and I went ahead and retired it anyway. We both decided that we aren't quite ready for her to sleep in her own room yet so we moved her crib into our bedroom.
I almost forgot to tell you! Kennedy way given an apnea monitor to wear at night when she came home. Mostly is was given to us because I kept pushing for one after she had a few heart rate drops close to her discharge date and because the insurance didn't put up a fight when the doctors requested one for us. We had alarms since she had been home, but as far as we could tell they were all false and they usually only have you keep the monitor until the baby is 6 months adjusted so a few weeks ago Shawn and i decided to let Kennedy try a night off the monitor and we haven't been back since. The discoloration where her leads went has improved and Kennedy still scratches her chest but far less frequently than when she had to wear the leads every night. All in all Kennedy is doing great. Amazing considering where she was eight months ago. Well that's all for now. Type to you soon!
Monday, December 29, 2008
Christmas!
Coming Soon!
Christmas Pictures and a real update
(make sure you imagine that in the movie guys voice when you read it)
Friday, December 19, 2008
Winter Wonderland
Kennedy's first snow was on Monday it was one of those really great storms where we got a whopping 6 inches and caused us to cancel the teacher coming to work with Kennedy since no one really drives in the snow out here. I was very concerned because Tuesday Kennedy had an appointment down the hill that took me three months to get and I wasn't about to go down the hill and get stuck and run out of oxygen if they shut the pass. Turned out Tuesday was fine and although there was a tiny bit of snow on the side of the road once I got down the dirt road and on to pavement there was no problem. Wednesday morning we woke at 5am to feed Kennedy and for Shawn to get ready for work. Again there was snow on the ground, but it looked like it did Monday so no big deal. Right before Shawn left for work we got a phone call saying the school was closed and Shawn got his first snow day in 3 1/2 years of working for the school district. He was super excited of course. We had gone to bed early the night before so we decided to stay up and watch the snow for a while. Around 8 or 9 Shawn decided he would go into town. It hadn't stopped snowing, but usually by the afternoon snow is all but gone, so neither of us thought much of it and we had a check that needed to go in the bank and we were low on groceries so off he went. Shawn made it most of the way down the dirt road only to get stuck in the snow and mud just yards from the pavement. A stranger stopped and helped get him out and Shawn went about his business in town. I called him periodically with updates and just to check his progress. It snowed the whole time he was gone. On the way home the truck got stuck again so I called next door and my parents went about getting stuff together to go get Shawn unstuck but their big trucks were sliding all over the place so they couldn't help. Shawn had to trudge through at least a foot of snow for a quarter mile with three bags of groceries and two gallons of milk. It continued to snow, and snow and snow all day. In fact it snowed from when we woke at 5 am to at least eight or nine at night. All in all we ended up getting at least two feet of snow. More than I have ever seen. So much so that the cancelled school yesterday and today too. We are still covered in snow and I have no idea how long its going to take to melt. The truck it still stuck but I am hoping that we will be able to get out sometime this weekend so the Kennedy and I can make it to her appointment on Monday for her Synigis shot.
Later In the Day
The Morning After

Monday, December 8, 2008
Gather 'round folks!
.jpg)
She has been doing so well with sitting up lately! She was sitting in her bumbo today and it took her a whole 15 minutes before she started to get tired. It might not seem like very long, but up till now she has only spent 5 minutes at most in there before she would start having a hard time breathing and we would have to take her out. She did so well that I put her on the counter and she watched me wash her bottles. She has been eating better that past few days. For about two weeks she was having problems with her bowel movements and the longer it took her to have one the less she would eat. We were giving her suppositories, but if you aren't careful babies can develop a dependence on them so I spoke to Kennedy's Pediatrician and she recommended giving her 1-2 ounces of apple juice a day to see if that would help and so far it has worked great. She is not too fond of the apple juice on its own, but we have been mixing 1 ounce of diluted apple juice with 1 ounce of formula and giving that to her daily. We call it her apple milk and she seems to be ok with the 1:1 ratio. I can't believe that Kennedy is going to be 7 month old on Thursday. Pretty soon we are going to need to start her on solids so I am going to talk with the nutritionist at the BPD clinic on Thursday about it and see if we will have to supplement her calories once she moves on to solids. She hasn't been gaining weight as well as she once was, but I think that has a lot to do with some side effects she had from trying to discontinue medications as well as the constipation causing her not to eat.
This past Wednesday I started to feel run down in the afternoon and by Thursday morning I was miserably sick. Shawn stayed home from work to care for Kennedy and Friday my mom took her while Shawn was working. Once Shawn was home it was his full responsibility to care for Kennedy so that she would be exposed to me as little as possible. I wore a mask and washed and sanitized a bunch, but today Shawn said he wasn't feeling well before he left for work. I am much better, so this time I will be able to care for Kennedy if he is sick. Now we have to watch and wait to see if Kennedy will get what we have and hope that it isn't RSV. I will keep the blog updated and let you know if she comes down with something.
Wednesday, December 3, 2008
I know, I know, I know....


Friday we just layed around and relaxed for the most part. Shawn got up and went to Staples to get a couple of pairs of Skull Candy earphones since they were on sale and he goes through them like underwear. It was his first experience with Black Friday and he couldn't believe that there would be so many people waiting in a line at Staples of all places but he was able to get in and out in a matter of minutes. That was and will be the extent of our Christmas shopping this year. We are having a bit of a hard time with money so we have decided there will be no presents this year although we will probably be getting one gift from Santa for Kennedy. I know she won't remember it, but its her first Christmas and I will do everything in my power to make sure Santa stops at our house every year for her. Christmas has so many special memories for me and want her to love the holiday as much as I do. Part of me is glad we aren't buying anything this year. No crowds, no stressing out over what to get for everyone and trying to out do my gifts from last year. It's going to be a nice holiday focused on family and spending time together, but of course the spoiled two-year-old in me wants presents and lots of them. Friday afternoon/evening my mom came over and put up one of her fake Christmas trees up for me. Wouldn't you know it, when you actually take your time and really fluff those branches out those fake trees can look pretty good! My dad also came over and brought one of his extra computers and a laser printer for me. I am trying to apply for some work from home jobs and our old computer doesn't have the memory and storage space needed so he generously donated one of his to the cause. He and Shawn hooked it all up and networked it to our old computer so I can access the pictures and things. We used my 'Alice in wonderland' (ie- super tiny) Ikea dinner table as a desk and its a pretty sweet set-up. It's nice to have a little work space all set up. I made it as much like my desk at my old job was and now when I am sitting at it I actually feel really productive.
Here is where I will be writng my blogs from.

"Ok," you say, "that sounds fun, but super exciting? I don't think so."
.jpg)
.jpg)






.jpg)







